Sometimes medical language can be complicated and confusing.
We are going to break down PTLD into ‘bite-sized chunks’ so you can best understand exactly what is going on.
What is PTLD?
Post-tuberculosis lung disease (PTLD) is an illness where you have breathing problems because of a tuberculosis (TB) infection in the past.
There are many types of PTLD that can affect different areas of the lung. For example some PTLD affects the breathing tubes (airways) and others affect the blood vessels.
Why do I have PTLD?
Your immune system is your body’s defence against an infection.
When you have had TB infection in the lungs your immune system fought hard against the TB, curing you of an infection.
Sometimes when your immune system works really hard it can cause inflammation, and this can permanently damage the lungs and cause breathing problems, even though you no longer have TB infection.
If I have PTLD, does that mean I have TB infection?
No – having PTLD means you have previously had TB infection.
BUT – if you have previously had TB then you are more likely to have TB infection again. You should watch for new symptoms such as:
- Worsening cough or breathlessness
- Blood in your sputum
- Fever or chills
- Night sweats
- Chest pain
- Loss of weight
If you are worried you have TB infection then you should see your doctor.
Why did I develop PTLD after TB infection but other people didn't?
There is still lots about PTLD that scientists are trying to discover. Currently it is not clear why some people develop PTLD, but it is thought to be related to your body’s immune response to the TB infection.